Patient Advisory Board
Chaired by EURORDIS, patient representatives from 11 organisations have joined the consortium to ensure the patients’ perspective is secured and prioritised in all research activities of Screen4Care.
The role of the Patient Advisory Board is to consult the project on insights, needs and experiences of those affected with rare diseases. This will help ensure that Screen4Care’s direction, goals and strategy are closely aligned with the priorities of people living with rare diseases and their families.
Find more information on the members of Screen4Care's Patient Advisory Board through the links below