Timeline

21/09/2021

Consortium Agreement is fully executed

23/09/2021

Ethical, Legal and Safety Team (ELST) is formed

01/10/2021

Project starts with 35 beneficiaries

13/10/2021

Grant Agreement is fully executed

25/10/2021

LinkedIn and Twitter accounts have been launched

Follow us on Twitter and LinkedIn

26/10/2021 - 27/10/2021

Screen4Care kick-off meeting

25/01/2022

Screen4Care is presented at ERN Euro-NMD virtual meeting

10/02/2022

Screen4Care is presented at innoforum at sitem-insel

11/02/2022

Social media campaign for the International Day of Women and Girls in Science

17/02/2022 - 19/02/2022

Screen4Care is presented at International Conference on Duchenne and Becker Muscular Dystrophy

28/02/2022

Screen4Care website launch

28/02/2022

Social media campaign for Rare Disease Day 2022

01/03/2022 - 02/03/2022

Screen4Care is presented at the 2nd International Conference on Rare Diseases

01/04/2022

UKLFR joined the consortium

23/06/2022

PTC joined the consortium

13/07/2022

Screen4Care is presented at World Orphan Drug Congress

15/07/2022

Commentary paper published on IJNS

23/07/2022

Screen4Care is presented at the Early diagnosis of patients with rare disorders in the EU crucial role of the newborn screening

05/09/2022

Multi Stakeholder External Board (MSEB) kick-off meeting

14/09/2022

Social media campaign for Newborn Screening Awareness Month

30/09/2022

Screen4Care is presented at SSIEM

04/11/2022

Screen4Care website made available in German, Italian, and French

07/11/2022

1st Screen4Care annual meeting

18/11/2022 - 19/11/2022

Partecipation in the Endocrinology Debate and Global Exchange (EDGE) Meeting 2022

10/12/2022

Partecipation in the ERN-ITHACA Research WG Workshop

11/02/2023

Social media campaign for the International Day of Women and Girls in Science

17/02/2023 - 19/02/2023

Partecipation in the 20th International Conference on Duchenne and Becker Muscular Dystrophy

28/02/2023 - 01/03/2023

Screen4Care is presented at the 3rd International Conference on Rare Diseases: Greek Chapter

28/02/2023

Social media campaign for Rare Disease Day 2023

06/03/2023 - 07/03/2023

1st hybrid Screen4Care consortium meeting in Ferrara

21/03/2023

Screen4Care is presented at the ERN-ITHACA Webinar #6 “Innovation in Newborn Screening across Europe”

31/03/2023

A total of 17 deliverables submitted

17/04/2023

Women's Open Week at University Hospital of Ferrara

19/04/2023

Frontiers in Pediatric and Genomic Medicine in San Diego

19/04/2023

NBS Conference in Genoa

20/05/2023

16th International Congress of Paediatric Laboratory Medicine-Satellite Meeting in Rome

24/05/2023

Signalise: a Dazzle4Rare Podcast

07/06/2023

Duchenne Care Conference

10/06/2023

ESHG Session 6

12/06/2023

European Society of Human Genetics in Glasgow

29/05/2024

SSIEM Annual Symposium

29/09/2023

The Annual Conference of the Austrian Society for Paediatrics and Adolescent Medicine

30/09/2023

XIV National Conference for Rare Diseases and Orphan Drugs

05/10/2023 - 06/10/2023

ICONS Conference

23/11/2023

Screen4Care Newsletter Issue #1

24/01/2024 - 25/01/2024

The Festival of Genomics & Biodata

11/02/2024

International Day of Women and Girls in Science

29/02/2024

Rare Disease Day

07/04/2024

World Health Day

25/04/2024 - 26/04/2024

2nd Face-to-Face Consortium Meeting

29/04/2024

Undiagnosed Day

30/04/2024

Rare Barometer Survey Webinar

15/05/2024 - 16/05/2024

European Conference on Rare Diseases and Orphan Products 2024

30/09/2026

End of project